Data Sharing

Why information is collected about you, the ways in which this information may be used and who will be collecting it

General Practice Data for Planning and Research (GPDPR)

 NHS Digital’s daily collection of GP data will support vital health and care planning and research.
 
19 July 2021 UPDATE
We have been advised by the Department of Health and Social Care that they have cancelled the deadline of 1 September.  We will add more information when we receive it.


16 June 2021

You may have noted in the media plans by NHS Digital to extract data from GP patient records.  From 1 September 2021 GP practices will be required to supply patients' medical information to NHS Digital in a project know as GPDPR.  The information will consist of your full GP record as well as new information added to it on an ongoing basis.  Under the Health and Social Care Act 2012, GP practices have no choice but to allow NHS Digital to extract this information - it is a legal oblgation.  it will be used for planning health services, commissioning, population health management and for research.  This is known as secondary uses of your medical records.

Although GP practices cannot object to the data leaving the practice, individuals can instruct their practice to prohibit the transfer ie you have the right to opt out

To find out what this is all about, please have a look here:

General Practice Data for Planning

How my confidential data is used

If you wish to opt out, you must inform us before 1 September 2021. If you opt out after this date, some of your data may have already been extracted, but no further extractions will take place after you opt out.

To opt out, you must complete the required opt out form and return it to the surgery 

A copy of the Type 1 opt out form can be downloaded here or hard copies are available at Reception.

IMPORTANT - If you chose to opt out, your medical record will not be available in CHIE (see below).  This means that if you attend a hospital in Hampshire or the Isle of Wight as an emergency, a clinician will not be able see your basic GP Record which might include any planning decisions you have made. 

NHS Data Sharing and National Data Opt- Out
Your health and care information is used to improve your individual care. It is also used to help research new treatments, decide where to put GP clinics and plan for the number of doctors and nurses in your local hospital. Wherever possible the NHS tries to use data that does not identify you, but sometimes it is necessary to use your confidential patient information.

Who can use your confidential patient information for research and planning?
It is used by the NHS, local authorities, university and hospital researchers, medical colleges and pharmaceutical companies researching new treatments.

Making your data opt-out choice
You can choose to opt out of sharing your confidential patient information for research and planning. There may still be times when your confidential patient information is used: for example, during an epidemic where there might be a risk to you or to other people’s health. You can also still consent to take part in a specific research project.

You do not need to do anything if you are happy about how your confidential patient information is used

If you do not want your confidential patient information to be used for research and planning, you can choose to opt out securely online or through a telephone service.  

to find out more or to make your choice visit  nhs.uk your data matters or call 0300 303 5678.

This opt out will not prevent invitations to current and future health screening programmes 

 

Summary Care Record (SCR)
If you are registered with a GP practice in England you will already have a Summary Care Record (SCR), unless you have previously chosen not to have one.  It will contain key information about the medicines you are taking, allergies you suffer from and any adverse reactions to medicines you have had in the past.

Information about your healthcare may not be routinely shared across different healthcare organisations and systems. You may need to be treated by health and care professionals that do not know your medical history. Essential details about your healthcare can be difficult to remember, particularly when you are unwell or have complex care needs.

Having a Summary Care Record can help by providing healthcare staff treating you with vital information from your health record. This will help the staff involved in your care make better and safer decisions about how best to treat you.

You have a choice
You have the choice of what information you would like to share and with whom. Authorised healthcare staff can only view your SCR with your permission. The information shared will solely be used for the benefit of your care.

Your options are outlined below:

  1. Express consent for medication, allergies and adverse reactions only. You wish to share information about medication, allergies and adverse reactions only.
  2. Express consent for medication, allergies, adverse reactions and additional information. You wish to share information about medication, allergies and adverse reactions and further medical information that includes: Your significant illnesses and health problems, operations and vaccinations you have had in the past, how you would like to be treated (such as where you would prefer to receive care), what support you might need and who should be contacted for more information about you.
  3. Express dissent for Summary Care Record (opt out). Select this option, if you DO NOT want any information shared with other healthcare professionals involved in your care.

If you do not make a choice, a Summary Care Record containing information about your medication, allergies and adverse reactions and additional further medical information will be created for you as described in point 2 above.

For more information: Phone 0300 303 5678 or visit www.nhscarerecords.nhs.

The Care and Health Information Exchange (CHIE)
The CHIE is a secure system which shares health and social care information from GP Surgeries, hospitals, community and mental health, social services and others in and around Hampshire and the Isle of Wight. Only health and social care professionals who are involved in your care are allowed access to your record and can identify your from it. Your information is also used to improve future care for you, your family and for other patients.  This helps plan NHS services and supports medical research.  To keep your information safe it is moved to a separate database called ‘Care and Health Information Analytics’ (CHIA) and changed so that it cannot be used to identify you.  Your data is never shared for the benefit of commercial companies like drug manufacturers.  People who analyse data on CHIA do not have access to CHIE so cannot identity you.

For more information: visit www.CHIE.org.uk.

Confidentiality
We maintain our legal duty of confidentiality to you at all times. We will only ever use or pass on information about you if others involved in your care have a genuine need for it. We will not disclose your information to third parties without your permission unless there are exceptional circumstances, such as when the health or safety of others is at risk or where the law requires information to be passed on.

Access to data
You have a right under the Data Protection Act 2018 to find out what information we hold about you. This is known as ‘the right of subject access’. If you would like to make a subject access request, please do so in writing to the practice manager. If you would like to know more about how we use your information, or if you do not want us to use your information in this way, please contact the practice manager.

Benefits of sharing information
Sharing information can help improve understanding, responses to different treatments and potential solutions. Information will also help to:

  • Provide better information to out of hours and emergency services
  • Prevent prescribing of medication to which you may already have an allergy
  • Make more informed prescribing decisions about drugs and dosages Avoid unnecessary duplication in prescribing
  • Increase clinician confidence when providing care
  • Results of investigations, such as X-rays and laboratory tests
  • Reduce referrals, ambulance journey admissions, tests, time wastage and visits to healthcare premises
  • Find out basic details about you, such as address and next of kin

Do I have a choice?
If you do not wish your records to be shared on a Summary Care Record (SCR) or on the Care and Health Information Exchange (CHIE) complete the Data Sharing Choices form  below. You can change your mind at any time, just complete another form.

Objecting on behalf of others
If you are a carer and have a Lasting Power of Attorney for health and welfare then you can object on behalf of the patient who lacks capacity. If you do not hold a Lasting Power of Attorney then you can raise your specific concerns with the patient’s GP.

If you have parental responsibility and your child is not able to make an informed decision for themselves, then you can make a decision about information sharing on behalf of your child. If your child is competent then this must be their decision.